Sean

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Sean talks about his family and their journey with Alagille syndrome. Alagille syndrome, or ALGS, is a rare genetic disorder that can affect the liver, heart, skeleton, eyes and kidneys. For Sean's family, ALGS impacts each affected child differently. For more information and support, contact the Alagille Syndrome Alliance at alagille.org.

Delila

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Valarie describes her family's journey with baby Delila who has Alagille syndrome.