Rare Life: George


George and his family love history. They enjoy road trips to Williamsburg, Amish country, Civil War and Revolutionary War sites, and any other spot of historical interest. Along with George, their four kids benefit from their mom’s passion as a U.S. history teacher, making stories of the past relevant to life today. George’s personal history includes an ultra-rare disorder diagnosis of cerebrotendinous xanthomatosis, or CTX. But like so many rare disorder diagnosis stories, his began as a mystery.