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https://travere.com/wp-content/uploads/Benji-232px-BW.png 232 232 David Anderson https://travere.com/wp-content/uploads/Travere-TxTM_Inline-fullcolor.png David Anderson2021-09-27 10:57:422021-10-04 15:47:16Benji
Benji, nine years old, loves wrestling with his father and playing with his best friends. He is quite fond of elevators – both watching them and riding in them. Benji is a happy kid. He is also a rare kid, and lives with NGLY1 deficiency, a complex neurological syndrome resulting from a shortage of the enzyme N-glycanase 1. Read about Benji’s ultrarare journey,