A man in a blue sweater looking into camera

Meet Damian

When Damian was 18 years old and a freshman in college, he woke up with stabbing pain on his left side. He skipped class and stayed in bed, only getting up to use the bathroom. Eventually felt better. In retrospect, he thinks now that was his first stone.
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Rare Disease Caregiving in America

The National Alliance for Caregiving (NAC) in partnership with Global Genes set out to examine the issues and challenges facing those who provide unpaid care to someone with a rare disease.