An update on our partnership with Children's National Rare Disease Institute.
https://travere.com/wp-content/uploads/Marshall-Summar.jpg300400superadminhttps://travere.com/wp-content/uploads/Travere-TxTM_Inline-fullcolor.pngsuperadmin2020-07-16 15:16:312020-11-03 12:35:16Connecting More People to Optimal Rare Disease Care
July 1, 2020 -- Our CEO and president Eric Dube, Ph.D., recently spoke with Rare Revolution Magazine about motivation, inspiration, challenges and hope.
https://travere.com/wp-content/uploads/rare-revolution-logo-web.png243400superadminhttps://travere.com/wp-content/uploads/Travere-TxTM_Inline-fullcolor.pngsuperadmin2020-07-01 09:42:532020-09-15 10:05:17Eric Dube, Ph.D., Interviewed by Rare Revolution
Thomas, living with peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD), talks about his family, favorite activities and shares a knock-knock joke.
https://travere.com/wp-content/uploads/thomas.jpg7521164clienthttps://travere.com/wp-content/uploads/Travere-TxTM_Inline-fullcolor.pngclient2020-04-18 15:57:342020-10-21 15:21:10Meet Thomas
Paul, living with cystinuria, talks about the critical role of water – both in his profession and for managing his rare condition.
https://travere.com/wp-content/uploads/fireman-100.jpg735855clienthttps://travere.com/wp-content/uploads/Travere-TxTM_Inline-fullcolor.pngclient2020-04-18 15:54:212020-10-21 15:09:15Meet Paul
Gayle Sweeney is on a mission to show people living with cystinuria and their loved ones – how to advocate for themselves. She has built a worldwide online community of people touched by this challenging genetic disease.
When Damian was 18 years old and a freshman in college, he woke up with stabbing pain on his left side. He skipped class and stayed in bed, only getting up to use the bathroom. Eventually felt better. In retrospect, he thinks now that was his first stone.
The National Alliance for Caregiving (NAC) in partnership with Global Genes set out to examine the issues and challenges facing those who provide unpaid care to someone with a rare disease.
https://travere.com/wp-content/uploads/Caregiver-thumb.png429609David Andersonhttps://travere.com/wp-content/uploads/Travere-TxTM_Inline-fullcolor.pngDavid Anderson2019-01-23 16:07:172020-10-14 12:07:37Rare Disease Caregiving in America
Rare Caregiver Respite Program
AdvocacyConnecting More People to Optimal Rare Disease Care
News, Stories & InsightsEric Dube, Ph.D., Interviewed by Rare Revolution
NewsMeet Thomas
Stories & InsightsMeet Paul
Stories & InsightsMeet Gayle Sweeney
Advocacy, Stories & InsightsMeet Damian
Stories & InsightsRare Disease Caregiving in America
Advocacy, Stories & Insights