Always Resilient
I’m just Madi.
Madi has lived with focal segmental glomerulosclerosis (FSGS), a rare kidney disease, since she was four years old. But FSGS is only one part of her story.
Alongside her mom, caregiver, and advocate, Christine, Madi shares her experience with FSGS as well as the interests and passions that make her who she is. Together, they reflect on the challenges they’ve faced, the importance of advocacy and support, and the special bond they’ve built along the way. Learn more about Madi and Christine and their journey with FSGS in their Rare Life story.