PATIENT ADVOCACY

Advocacy is at the heart of our mission

What is advocacy?

What do we mean, as a biopharmaceutical company, when we use the word advocacy?

Advocacy is about building genuine, long-lasting relationships. It’s about having the interests of patients top of mind with every action. It’s about listening to the rare disease community and ensuring that patients’ valuable insights guide company decisions. Advocacy is about mutual trust, and a lifelong commitment to stand beside people living with rare disease and their families and work on their behalf.

We take advocacy very seriously.

 

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Action in Rare Kidney Disease

In support of patients with rare kidney disease

  • We work with NephCure Kidney International to increase patient access to disease education, treatment, earlier diagnosis, equitable care, and to strengthen the rare glomerular disease community.
  • We work with the International Cystinuria Foundation to bring disease education and legislative attention to this painful rare kidney stone disease.
  • We work with IgA Nephropathy Foundation to make the condition more understood to families affected by it and the public.
Kevin - Living with FSGS

Action in Rare Metabolic Disease

In support of patients with rare metabolic disorders

  • We support HCU Network America (HCUNA) and HCU Network Australia to elevate the voices of families impacted by homocystinuria.
  • We partner with the ALD Alliance , HCUNA, NORD, and other organizations to advocate for modernized newborn screening so that affected newborns are diagnosed early and can receive early and often life-saving care.
HCUNA Conference 2024

Health Equity

Addressing health disparities among patients of all backgrounds

For many years, Travere has supported the creation of impactful programs aimed at mitigating health disparities. We have actively collaborated with organizations of all sizes to combat bias and eliminate disparities experienced by individuals affected by rare disease.  

Travere sponsors the Rare Disease Diversity Coalition led by the Black Women’s Health Imperative to address disparities in the healthcare system, access issues, coverage, and affordability.

We also supported the first-ever Diversity Inclusion Advocacy Fellowship at the EveryLife Foundation for Rare Diseases to increase the representative diversity of patient voices and to engage low income and minority communities in advocacy.

 

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MEET SOME OF THE PATIENTS, CAREGIVERS, AND ADVOCATES IN OUR COMMUNITY

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Our Patient Advocacy Partners

Travere Therapeutics values the important role of patient advocacy groups and works together with these organizations to support people living with rare disease.