Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment

NBA Champion Alonzo Mourning, White House COVID Health Equity Task Force Chair Dr. Marcella Nunez-Smith, Rep. G. K. Butterfield and Leading Rare Disease Experts Joined RDDC on February 23rd for Launch of Diversity Coalition

On February 23, 2021, the Black Women’s Health Imperative (BWHI) held the first public meeting of the Rare Disease Diversity Coalition (RDDC) with more than 200 rare disease community members joining together to endorse an ambitious platform of 10 initiatives to achieve tangible solutions to address issues, including delays in diagnosis and treatment for diverse patients. We’re proud to work closely with the leaders of the BWHI to spearhead the formation of the RDDC.

Find out more at rarediseasediversity.org

Read the full press release >

View the February 23, 2021 meeting here or on youtube.