Consumer Health Data Privacy Policy

Overview

Travere Therapeutics, Inc., and its subsidiaries and affiliates (collectively “Travere Therapeutics,” ”we,” “our,” or “us”) are committed to respecting your privacy. This Consumer Health Data Privacy Policy supplements the Travere Therapeutics Privacy Policy and applies to personal data defined as “consumer health data” subject to the Washington State My Health My Data Act.

Consumer Health Data Collected

The consumer health data we collect depends on the context of your interaction with us. Examples of consumer health data we collect include information about individuals’:

health conditions, treatment, diseases, or diagnoses;
use or purchase of medications;
diagnoses or diagnostic testing, treatment, or medication;
health-related surgeries or procedures;
measurements of health information;
symptoms of use or adverse events; and
information that could identify your attempt to seek health care services or information.

Sources of Consumer Health Data

We collect consumer health data from the following sources:

Directly from you when you interact with us or our service providers, use our products and services, or use our websites;
Indirectly from you when you visit our websites through use of cookies and other tracking technologies;
From our clinical trial partners or patient support providers;
From healthcare providers, specialty pharmacies, and insurers; and
From publicly available sources such as social media websites.

Purposes for Collection and Use

We collect consumer health data in order to provide you with information about our therapies, provide you with our therapies, and facilitate your use of our therapies. We also use the consumer health data we collect to market our products, services, and programs to you, compile statistics, conduct research, improve our products, services, and programs, and comply with legal obligations such as adverse event reporting required by the Food and Drug Administration (FDA).

Disclosure of Consumer Health Data

We disclose consumer health data to our service providers and business partners so that they may help us provide our products, services and programs. With your authorization, we may also disclose consumer health data to clinical trial partners, patient assistance programs, patient advocacy organizations, social workers, health care providers, pharmacies, insurers, and other potential funding sources. We also disclose consumer health data to service providers so they can assist with analytics and marketing. We also disclose consumer health data to clinical research regulatory bodies as required by law.

We may also disclose consumer health data to our affiliates: Travere Therapeutics Ireland Limited and Travere Therapeutics Switzerland GmbH.

We may also disclose consumer health data to the parties of a corporate transaction such as a merger or acquisition. We may also disclose consumer health data to government agencies or otherwise as necessary to prevent, detect, or investigate fraud or threats to health, safety, or legal rights.

Your Rights

Washington residents have the following rights with respect to your consumer health data, subject to certain exceptions:

The right to confirm whether we process your consumer health data, and to access and receive a copy of your consumer health data;
The right to a list of all third parties and affiliates with whom we have shared or sold your consumer health data and an email address or other online mechanism that you can use to contact each third party;
The right to delete your consumer health data;
The right to withdraw consent to the collection, sharing, or selling of consumer health data.

You can submit a request to exercise these rights using any of the mechanisms listed in the Contact Information section below. Depending on the type of request, we may need to verify your request before we can fulfill it. Please note that certain exceptions may apply to these rights (e.g., we may be unable to honor a request to delete if it conflicts with our legal obligation to retain and report adverse event data). Finally, please review the Travere Therapeutics Privacy Policy for additional rights you may have with respect to your personal data more generally.

You also have the right to appeal any decisions we make with regard to your rights request. If your appeal is unsuccessful, you can raise a concern or lodge a complaint with the Washington State Attorney General at www.atg.wa.gov/file-complaint.

Changes to this Policy

We may revise this policy from time to time. When we make changes to this policy, we will post the updated version on our website and indicate the date the policy was last updated. We encourage you to review this policy periodically to check for any updates. Your continued use of our websites or services indicates your consent to the terms of this policy.

Contact Information

If you have any questions about this policy or if you would like to exercise any privacy rights, please contact us by accessing our webform at https://travere.com/privacy/individualrights, or by calling us at +1-888-969-7879 or by writing to one of the following addresses:

Travere Therapeutics, Inc.
Attn: Chief Compliance & Privacy Officer
3611 Valley Centre Drive, Suite 300
San Diego, CA 92130
USA

Email: dataprotection@travere.com

Supplement to Consumer Health Data Privacy Policy for Nevada Consumers

This supplement to our Consumer Health Data Privacy Policy applies to Nevada residents for purposes of providing additional disclosures required by Nevada’s consumer health data privacy law (Nevada Senate Bill 370).

The foregoing consumer health data disclosures and rights also apply to Nevada residents. In addition, Nevada residents also have the right to review and amend any consumer health data we maintain about them. Nevada residents can escalate unsuccessful appeals of consumer rights requests to the Nevada attorney general at https://ag.nv.gov/complaints/file_complaint/. Also, please note that third parties may collect consumer health data over time and across different internet websites or online services when you use our websites.

This Policy was last updated on March 31, 2024.

CONSUMER HEALTH DATA PRIVACY POLICY